Harnessing your voice

We asked for your help to understand:  

• emerging changes to the way people seek information and support from BCNA, especially since COVID-19.  
• whether our resources are still meeting the needs of our members, including being accessible and relevant, especially for different communities and groups, such as people living with metastatic breast cancer and people living with a disability.  
• how our members and health professionals perceive us and our role in the cancer sector so that we can continue to advocate for improvements to cancer care, build confidence and connection across our member networks, and support health professionals to tailor health services to the needs of each patient and their family.  

What we were told:

• The majority reported being referred to BCNA by their breast care nurse.
• Respondents thought BCNA information was evidence-based, clear, easy to understand, relevant and trusted.
• People reported some of their information needs were not met, including management of side effects, assistance with emotional impact, managing fear of recurrence, and navigating a new normal after diagnosis.
• A large number said they were not aware of the full range of BCNA’s information and services.
• Respondents said BCNA’s information needs to be more tailored for specific communities, for example First Nations Peoples, those with metastatic, men with breast cancer, people living with a disability, and LGBTIQ+ people.
• BCNA was seen as an organisation that improved breast cancer outcomes through advocacy and the voices of lived experience.
• For some members, the pink branding did not sufficiently differentiate BCNA from other breast cancer organisations and for others the pink lady branding was considered less inclusive of diverse breast cancer experiences.